New year, new beginnings

new yearWe recently said goodbye to Nora’s CAMHS* counsellor. This wonderful woman first met us when Nora was at her worst.

She was no longer speaking, had stopped eating and wasn’t able to do many of the normal day to day tasks most of us take for granted. She was self-harming and suicidal. She had been hospitalised on several occasions, and was assessed by CAMHS every time she ended up in hospital.

Despite the well-documented stories of how difficult it can be to access children’s mental health services, this wasn’t our experience. From the outset, CAMHS were available and willing to help Nora.

However, as we were already paying for Nora to be treated privately, we had to make a choice: stay with the private service or move to CAMHS. Initially, we chose to stay within the private sector.

ambulance.jpgWhat changed our mind? A number of factors, including an afternoon of confusion following one of Nora’s terrible ‘meltdowns’. Normally, I was able to manage these episodes. On this day, things got so bad I ended up dialling emergency services, who sent an ambulance to the house. The paramedics immediately decided that Nora needed to be hospitalised. There was just one problem…

Because Nora was being treated privately, the paramedics didn’t know what hospital Nora should be taken to. They called our nearest NHS hospital, who told them Nora needed to be taken to the private hospital where she was being treated as an outpatient. But when I called the private hospital, they told me they couldn’t see her as it was an emergency and they didn’t deal with emergencies.

Several phone calls later, we ended up at an NHS hospital in a nearby town. We stayed there for several nights, where Nora was – once more – assessed by CAMHS. It was at this point that we decided to switch from the private sector to the NHS.

In retrospect, I’m pretty sure this decision saved Nora’s life.

The care we’ve had under CAMHS has been second-to-none. During the worst of Nora’s illness, we had mental health workers calling to our house daily, providing much-needed support. There were people I could call, twenty-four hours a day, when I was worried about my daughter. We had a team of caring, dedicated people, all doing their best to keep my daughter alive.

This was very different to the private sector where I had one phone number for one psychiatrist. In all the time we were under her care, she never once returned any of my phone calls.

Since that first meeting with our CAMHS counsellor, Nora’s recovery has been remarkable. This is largely thanks to her dedicated CAMHS carers, who do one of the most important jobs there is.

Lack of access to children’s mental health services has been widely document. I’ve blogged about it here previously. Understandably, parents who cannot get help for their children feel angry and frustrated.

These parents are right to be angry. In the UK today, three in four children with a diagnosable mental health disorder do not get access to the support they need. For those lucky few who do get allocated a service, the average waiting time is almost two months (and far longer in some parts of the country).

But we can’t blame CAMHS workers for the woeful state of children’s mental health services. Instead, the blame lies with the people making decisions around how public funds should be allocated.

Today in the UK, only 0.7% of the NHS budget is spent on children’s mental health. Without adequate funding and resources, CAMHS are simply unable to support the growing number of children and adolescents being referred to them.

young minds.jpgIf you care about children’s mental health, and you agree our government needs to do more to support essential mental health services, now is the time to act. Lobby your local MP or sign the Young Minds’ petition for a new era for young people’s mental health.

Let’s not stop telling our elected politicians they need to do more to prioritise the mental health and wellbeing of future generations.

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*CAMHS stands for Children and Adolescent Mental Health services

 

 

A diary of depression

girl on beachThis time last year, Nora’s illness was only beginning. We had no idea how bad things would become. We never could have imagined that our eleven-year-old daughter would reach a point where she was so ill she wanted to die.

For some time, I’ve wanted to write about how Nora’s illness progressed, but I’ve never been able to get the words down. It’s always been too painful.

But…I want other parents – who are going through something similar – to know that they’re not alone.

So, I’ve finally written something. I hope it helps.

Month one

Nora’s anxiety has become unmanageable. The only way I can get her into school if we go for long walks beforehand. This means getting up early and walking for up to two hours before school.

I know that Nora’s already in a dark place, and she needs help. Through our GP, we’ve got a referral for a private consultation with a psychiatrist. Apparently, Nora isn’t ill enough for a CAMHS referral.

Month two

The psychiatrist thinks Nora may be suffering from depression, although this condition is – apparently – extremely rare with children as young as Nora (she is eleven).

Because of Nora’s age, the psychiatrist rules out anti-depressants, and recommends a ten-week course of CBT counselling. My husband and I are relieved. It seems inconceivable to medicate our eleven-year-old daughter with anti-depressants.

Month three

The CBT sessions aren’t helping. Nora continues to deteriorate and I suspect the counsellor doesn’t really know how best to treat her.

Nora’s school have suggested that trying – and failing – to keep Nora in school is counter-productive. The counsellor disagrees and thinks we should keep sending her in.

We take the school’s advice, because it feels like the right thing to do. Nora stops going to school.

By now, Nora is self-harming and suicidal. More than once, we’ve ended up in hospital, where we spend nights on ‘suicide watch’. Nora undergoes several psychiatric evaluations. These confirm what we now know: Nora is suffering a severe depressive episode.

Nora’s psychiatrist prescribes anti-depressants. We are relieved. It’s clear Nora needs more than weekly counselling sessions to get her better.

girlMonth four

Nora has stopped speaking. Completely. The only time I hear her voice is during her terrible meltdowns, when the weight of what she is enduring simply becomes too much.  These happen several times a day.

Following one particularly bad episode, we end up back in hospital. We are given a private room, because Nora’s meltdowns are so upsetting to the other children on the ward.

For the third time, Nora is assessed by CAMHS, who tell us they can’t treat Nora while she’s being seen privately.

We have to make a choice. The psychiatrist’s secretary calls me and tells me Nora will get much better treatment under CAMHS. I take her advice and we end the private treatment.

Month five

We are now under the care of CAMHS. We now have a team of people looking after us. There are people I can phone at any time of the day and night. Mental health professionals visit us at home several times a week. We have a new psychiatrist and a brilliant counsellor.

Time and again, these professionals tell me they have never encountered a child with symptoms as severe as Nora’s. This is frightening, but also oddly reassuring because I know she is – indeed – very, very ill.

This month is Nora’s birthday. Her friends come to visit with presents. She can’t speak to them, but they all give her hugs and I’m glad they’ve come. They cry, because they haven’t seen her since she fell ill.

She is pale, gaunt and silent. She has lost so much weight, her friends look like giants beside her.

Month six

Nora’s CAMHS team tell me they are ‘flummoxed’ and simply don’t know how to treat her. If they cannot come up with a plan soon, the next step will be to admit her to a psychiatric unit. This is a specialised unit for teenagers with severe mental health problems. Typically, children in this unit are aged from fourteen to eighteen. Nora is twelve.

We are told Nora will have to be fed through a tube if we cannot get her to eat.

Month seven

We have a care plan! It’s pretty basic but it feels like a huge step forward. It involves Nora doing things like getting out of bed by herself, eating regularly, getting dressed and getting fresh air each day.

Nora doesn’t think she will be able to do any of these things. She locks herself in the bathroom and tries to cut her wrists. Luckily, with the help of a neighbour, I’m able to knock the door down before she cuts herself too badly.

Although this is awful, it’s also a turning point. Gradually, we see tiny signs of improvement. And then something wonderful happens. Nora starts speaking again. Whispers at first, just a few words every now and then.

But every single word is precious. Over the course of her illness, I’d forgotten what her voice sounded like; I would watch videos I’d recorded before she fell ill, simply so I could hear her speaking.

Today (one year since the beginning of Nora’s illness)

Nora is speaking, eating, exercising and engaging with life. She sees her friends. She goes to the gym and goes for long runs most days. She writes poetry, and takes acting classes. She is rehearsing for the lead role in a play.

We don’t know what the future will hold but, then again, none of us know that.

girls danding

Make a real difference this Christmas

black and white woman girl sitting
Photo by Gratisography on Pexels.com

Four months ago today, I wrote the Nora’s story page of this site.

Re-reading this now, it seems extraordinary to think how ill Nora was, and how rapidly she is recovering.

Four months ago, my beautiful daughter was in the grip of a crippling depression. She had stopped speaking (she was completely mute for several months), she was unable to get out of bed or get dressed without help, and she had lost so much weight we thought she’d have to be fed through a tube.

Nora’s anguish was so unbearable she didn’t want to continue living. More than once, she was admitted to hospital after serious suicide attempts.

It was a terrible time for our family but, even during the worst of it, we never stopped believing Nora would get better.

Four months on, and Nora’s recovery has been nothing short of miraculous. She is no longer suicidal or self-harming. The symptoms of her psycho-motor retardation are gone. She is speaking again, having fun and engaging with life.

Since I started this blog, I’ve met so many parents taking care of children with mental health problems. Parents, like me, who are struggling to deal with the challenges of supporting a child with a mental illness. Parents who desperately need help that simply isn’t available.

It’s no secret that the lack of resourcing and funding for children’s mental health in the UK is disgraceful. This is something I’ve blogged about previously, and it’s a topic I’m sure I’ll come back to again.

The problem isn’t just with children’s mental health, either. One in four people in the UK are reportedly suffering from some form of mental illness. Yet, all too often, these people are not getting the help they need.

It’s left to mental health charities to fill the gaps in mental health provision. Yet these charities, too, are stretched to their limits.

That’s why I am asking all readers of this blog to support this year’s Telegraph Christmas Charity appeal, which is raising much-needed funds for three mental health charities:

  • Changing Faces – which provides advice and support for people with a visible difference through counselling, networks and skin camouflage services.
  • Young Minds – a charity that offers a vital lifeline to thousands of parents and carers to prevent young people from coming to harm.
  • The Fire Fighters charity – which offers psychological support to firefighters in the wake of major incidents.

You may not have suffered mental health problems yourself, but I guarantee you know someone who has. Mental health charities offer an essential service to families and individuals who desperately need help.

Please help these charities to carry on doing the great work they do.

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Things I wish I’d known

girlOver the last year, I’ve learned a huge amount about mental illness in general, and childhood depression in particular. I’m not an expert, but I know a hell of a lot more than I did before my daughter’s illness.

In a recent post, I listed the top five things I’ve learned about supporting a child with depression.

Today is World Mental Health Day, which aims to raise awareness of mental health issues around the world.

So, to mark World Mental Health Day, I’ve decided to share the five things I wish I’d known earlier about mental illness.

Depression is a terrible illness

Before Nora fell ill, my knowledge of depression was limited. I knew it was an illness caused by a chemical imbalance in the brain. I vaguely understood that depressed people ‘felt down’ and ‘lacked energy’ and sometimes needed medication to help get their lives back on track.

I had no idea it could be a life-threatening illness that, in extreme cases, literally sucks the life out of its victims.

I hadn’t heard about psycho-motor retardation, a terrible depression-related condition that slows down your mind and body, making even the simplest thoughts or movements seem impossible.

At her worst, Nora lost the ability to speak. But she was always able to communicate, using pen and paper to tell me what she was experiencing. This post about depression, captures how she described the illness.

Children with depression hear voices

Did you know this? I sure as hell didn’t.

By the time Nora told me she was hearing voices, she was already very ill. We didn’t know what was happening, or why she’d got ill so quickly.

Like, I suspect, many parents who don’t know much about mental illness, I assumed hearing voices was a ‘very bad thing indeed’. Turns out it’s not half as bad as I imagined.

Of course, it’s very scary for the child who is hearing the voices. But, according to Nora’s psychiatrist, 90% of the children she sees hear voices at some point during their illness.

Anti-depressants save lives

I’ve banged on at length about this topic, so I won’t go on about it again here.

I know some people have concerns about giving anti-depressants to children. At one stage, I might have been one of those parents. I’m not now.

It’s okay to talk about suicide

What parent wants to discuss suicide with their eleven-year-old child? Not me, that’s for sure. Or so I thought until the first time Nora tried to take her own life. Since then, I’ve learned a lot about what you should – and shouldn’t – do when your child has suicidal thoughts.

Again, suicide is something I’ve spoken about in earlier posts, if you want to know about  what I’ve learned.

The most important thing to know is this: if your child tells you they wish they were dead, take them seriously. Speak to them; find out exactly what they’re thinking. Don’t be afraid to ask questions.

Being open – and pragmatic – about suicidal thoughts might just save your child’s life.

You’re stronger than you think you are

As the wise man, Kevin Bacon once said, you’re only ever as happy as your least happy child.

Like most parents, I’ve always assumed I would simply fall apart if something terrible happened to one of my children. In fact, this didn’t happen (well, it hasn’t happened so far…).

Yes, it’s been a terrible year. Over a few months, we watched our daughter change from a happy, confident, cheeky girl to someone who was so ill she was no longer able to speak or dress herself or do any of the basic tasks we take for granted.

We didn’t understand what was happening to our child. And we weren’t alone. The mental health experts working with Nora were also at a loss. We were repeatedly told they had never encountered a child with such severe symptoms. She was so ill, it took a team of mental health experts two months to agree the best way to treat her.

It was the worst of times for our family. But, somehow, we got through it. As Nora gets better, we are stronger as a family than we’ve ever been.

For that, and so much else, I am immensely grateful.

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Five things I’ve learned

lonely boyI’ve been slightly overwhelmed recently by the number of people I’ve met – online and in person – caring for someone with mental health problems.

These conversations have made me realise that I know quite a bit more about anxiety and depression than I did nine months ago, when Nora first became ill.

So, today’s blog looks at five important things I’ve learned about supporting a child with anxiety or depression.

Don’t wait to get help

This may seem obvious, but it’s not always. As parents, our first instinct  is to protect our children. We don’t want them to be ill.

Sometimes, when they start self-harming, stop eating or tell you they want to die, we don’t take this seriously. We tell them to stop self-harming. We sanction them for not eating properly. We tell them they don’t really want to die.

We try to address the problem with logic. But mental health problems aren’t logical.

Self-harming, suicidal thoughts, refusing to go to school, problems eating and sleeping… these are all signs your child needs help.

Educate yourself

This is important. No matter what support you’re getting from CAMHS or other mental health services, you – and you alone – will be the person spending most time with your sick child.

When Nora first fell ill, I believed I could ‘fix’ her through the sheer strength of my love and my determination that she would be well again. I approached her illness with the logical, problem-solving approach I use to tackle most of life’s problems.

Of course, unconditional love is hugely important. Your child needs to know you love them, no matter what. But they also need to know that you understand enough about their illness to help them get them through this dark and difficult time.

The more you learn about your child’s condition, the better placed you’ll be to give them the help they need.

If you’re unsure where to start, take a look at the website for mental health charity Young Minds. They have a wealth of resources, as well as a Parents Helpline you can call for help and advice.

You can also check out the resources section of this blog  for books and online material I’ve found most useful.

tabletsAnti-depressants aren’t always ‘a bad thing’

Nora has been taking Fluoxetine for six months now. She’ll need to continue taking the medication for a further six months, at least. Anti-depressants saved Nora’s life. We wouldn’t be where we are today without it.

I know that anti-depressants aren’t right for everyone. Finding the right medication, at the right dosage, takes time. And all the time you’re playing around with different levels and types of medication, you are acutely aware that you’re giving your child a drug that has horrific side effects.

In our case, persistence paid off. Once we got the medication right, Nora’s recovery was nothing short of miraculous.

Of course, medication alone isn’t enough. In Nora’s case, her recovery is down to a combination of medication, a counsellor who understands her complex issues, and a loving, supportive family.

If a psychiatrist prescribes anti-depressants for your child, that’s because they believe medication is your child’s best hope of recovery right now. You should listen to what the psychiatrist is telling you. It may be, that you try medication and find it doesn’t work. On the other hand, it might just save your child’s life.

Recovery takes time

Nora had been taking anti-depressants for about eight weeks before we saw the first early signs of improvement. At first, the changes were tiny. She started responding when I hugged her, putting her arms on mine for a moment before dropping them again. She started sleeping again. And then, one morning, a miracle happened – she got out of bed and came downstairs without anyone helping her.

Of course, the next morning – and others after that – she needed help again. But there were also many more mornings when she was able to do it alone. And since then, things have continued to improve.

But…

It’s taken nine months to get this far, and she’s still not ‘better’. She hasn’t gone back to school, she still has terrible meltdowns on a regular basis, and she struggles to do many of the day to day tasks she used to take for granted.

The key thing, however, is this: she’s getting better. Your child will too. Just don’t expect it to happen overnight.

It’s no one’s ‘fault’ your child is ill

We all know that mental illness can be triggered by traumatic events in a person’s life. But often people fall ill and there’s no obvious reason why.

If you’ve been a relatively okay parent, if your child’s life up to this point has been pretty uneventful, then the chances are this illness would have happened to them sooner or later.

It’s hard not to blame yourself when your child’s behaviour suddenly changes. Sometimes, it’s also hard not to blame your child.

The line between ‘bad behaviour’ and ‘behaviour caused by anxiety or depression’ is blurred, at best. How can parents know a child’s bad behaviour is deliberate and when it’s not? The simple answer is, we can’t.

But, we should remember this: when a child has anxiety or depression, they’re often unable to help the way they’re behaving.

It’s not your fault your child is ill. It’s not your fault their behaviour is worrying and disruptive. And it’s not their fault, either.

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I just want to be happy…

black and white woman girl sitting
Photo by Gratisography on Pexels.com

Last night my daughter tried to kill herself. This is not a sentence that trips lightly off the tongue. It’s hard to admit your child is so desperate they want to die. But it’s not the first time I’ve had to say these words. It may not be the last, either.

This time is particularly difficult, because she’s making such remarkable progress. In six, joy-filled weeks, we have seen our daughter emerge from the iron grip of her crippling depression and start to embrace life again.

But we’ve always known her recovery wasn’t going to be straight-forward. Recovering from depression is often described as ‘one step forward, one step backwards’. This is hard, because each step forward brings the promise that, one day, this terrible illness will be a distant memory. The steps back are cruel reminders that you’re still a long way from ‘better’.

‘I just want to be happy,’ Nora said, as I eased the knife from her hand last night. The knife she had taken from the dishwasher when she sneaked downstairs, looking for something she could use to kill herself.

Nora will be happy again. She’s already had many precious moments of happiness over the last six weeks. There are many more to come.

There’s a particular challenge in helping young people with depression. Their brains are not fully developed yet. They haven’t had the same breadth and depth of life experiences as adults. A combination of these factors can make them more prone to suicidal thoughts and tendencies than older people suffering from depression.

When a depressed adolescent is having a bad day, they are simply unable to imagine a time when their life won’t be plagued by this illness.

They want to be happy. But the illness means that’s not possible. The illness makes them believe they’ll never be happy again. And they cannot imagine having to keep on living a life without joy.

So…what can a parent do?

You keep going

You accept your sick child will have bad days, alongside the good. You let them know this isn’t their fault.

You love them, unconditionally, and do all you can to keep them safe

Let them know you’re with them, through the bad times as well as the good. Let them know they can talk to you, share their worries with you and you will listen.

You never forget this is harder for them

This is important. It’s too easy to feel sorry for yourself, to ask yourself ‘why me?’ or – worst of all – to try to blame your child for their illness.

If you find yourself thinking this way, stop.

Your child is suffering and they need you to be strong. They need you to be there for them, no matter how bad things get.

And they need you to never, ever stop believing you’ll get through this – together.

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Surviving the tough times

adult alone anxious black and white
Photo by Kat Jayne on Pexels.com

It’s four and a half months since Nora was diagnosed with severe depression and anxiety. Without doubt, these have been the worst four months of my life.

Despite being terribly ill, Nora is now making a remarkable recovery. I have already written about this so won’t bore you again with the details.

At her very worst, I always knew Nora would get better. She is, without question, the most single-minded and determined person I know. It’s not just me who thinks this. Her father, brother and CAMHS care workers are all in agreement. She is a force to be reckoned with.

Caring for a child with a mental illness is scary and lonely. You will need as much help as you can get. Here are some of the things that helped me through the worst of times. They may not all be relevant for you, but one or two might help you along the way.

Friends and family

I am immensely proud of how our little family pulled through this together. Nora’s brother, four years older than her, has done so much to help and support her. From spending time with her when she was at her very worst, to cracking jokes and having fun with her as she recovers, he has been the best big brother she could ask for.

Miraculously, my husband and I seem to have dragged ouR way through this relatively unscathed. We really dug in and got each other through each day. We were there for each other and our kids when we all needed it most.

As for my friends, I have simply been stunned by people’s kindness. Many of you will be reading this and I want you to know your help, love and friendship were never more appreciated or more needed.

family

Music

Soon after Nora fell ill, I discovered a singer I hadn’t heard of before. Her name is Camille O’Sullivan, and her music got me through some of my darkest moments. One song, in particular, resonated with me. I still can’t listen to it without weeping. It is raw and powerful and full of love.

CamilleHere’s a link if you’d like to hear it for yourself: Camille O’Sullivan singing Rock ‘n’ Roll Suicide.  Put the volume up high, sit back and let the music work its magic.

Wise mental health professionals

I’ve written previously about our negative experience with one CBT counsellor, and the ill-informed paediatrician who ‘didn’t believe in mental illness’. On the whole, however, our experiences with doctors and mental health professionals have been overwhelmingly positive.

It’s important you know this. I’ve spoken with parents who are put off getting help after one bad experience. Please don’t let that happen. Your child has an illness that requires professional help. Don’t fool yourself into thinking you can do this alone. Your child deserves more than that.

I know getting help isn’t always easy. In a previous post,  I’ve listed some of the ways you can push to get the right help for your child. I hope it helps.

Having a care plan and sticking to it

A key part of your child’s recovery is their care plan. This is a schedule, put together by your child’s mental health team, that your child has to follow in the early days of their illness.

In Nora’s case, her care plan consisted of carrying out basic tasks such as getting out of bed each day, getting herself dressed and eating a certain amount of food. If this seems extremely simple, it’s not. When someone is severely depressed, carrying out even the most basic tasks can seem too daunting.

Having a bespoke care plan was hugely important. It gave Nora – and me – a structure for getting through each day. Over time, it gave her confidence to believe she could carry out basic tasks that she’d thought were too difficult.

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Photo by Pixabay on Pexels.com

Reading about other people’s experiences of depression

I read – and reread – Matt Haig’s brilliant Reasons to Stay Alive. I read blogs detailing people’s experiences of depression and mental illness. I learned as much as I could about Nora’s illness.

I knew almost nothing about depression before Nora fell ill. I’m still no expert but I’ve learned enough to – hopefully – support her as best I can.

The resources section of this blog lists all the books and online resources I found most useful.

Faith

I am not a religious person. When I talk about faith in this context I mean faith in my daughter. I never once, not even at her very worst, believed Nora wouldn’t get better.

This wasn’t always easy.

Several times, we were told by mental health professionals they had never encountered a child of Nora’s age with such severe symptoms. At one point, her CAMHS counsellor told me they were ‘flummoxed’.

It took over a month for CAMHS to put a care plan in place for Nora. They simply didn’t know how to treat her when she was first referred to them.

Yet somehow, through all of this, I always believed she would be well again.

Of course, I don’t know what the future holds. I’m not naïve. I know that depression may be part of her life forever. I know she may get sick again. If that happens, I will hold onto the faith I have now.

Because I believe in my daughter. I believe in her strength and her determination. More than anything, I believe she deserves to live an incredible life, with or without ongoing mental health issues.

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When your child takes anti-depressants

tabletsThere’s a widely accepted belief among many parents that giving anti-depressants to a child is ‘a very bad thing’. Before Nora fell ill, I was one of ‘those’ parents.

I believed that the medical profession routinely over-prescribed anti-depressants to children who ‘didn’t really need them’. I believed this on the basis of no real evidence. I believed it because other parents believed it. I believed it because I read opinion pieces in broadsheet newspapers about the damaging effects of proscribing anti-depressants to young people.

I believed it because I was incredibly ignorant about mental health problems and the devastating effects they can have on young people and their families.

The purpose of this post isn’t to debate the pros and cons of giving anti-depressants to young people. I’ve had my fair share of negative reactions from other parents who ‘don’t think it’s wise’ for my child (yep, my child not theirs) to be taking drugs that can help her get better again. Quite frankly, I’m tired of trying to explain to people that if Nora wasn’t taking anti-depressants, she would very possibly be dead.

If you’re a parent wondering whether or not anti-depressants are the right choice for you child, I can’t help you make that choice. But I can tell you this: I absolutely believe that anti-depressants saved my daughter’s life.

This post is for parents who made the same choice we did.

Based my experiences with Nora, here are the five things I wish I’d known earlier. If I had, it would have saved me a whole lot of heartache and far too many hours searching the internet for answers.

They take time to work

When Nora was first prescribed anti-depressants we had unrealistic expectations of how quickly they would work. We watched her, day after day, for any signs of improvement. For the longest time, nothing changed.

It doesn’t help that it took time to get her dosage right (see below), but the waiting really was tough.

Nora’s been taking anti-depressants for five months now. During that time, her recovery has been remarkable. She’s still not ‘better’, but she is significantly different from the mute, withdrawn, suicidal child she was a few short months ago.

I know that her recovery isn’t only down to the anti-depressants, but they’ve certainly helped.

So, if you and your child are at the start of your journey with anti-depressants, hang on in there. It takes time, but the wait really is worth it.

You may not get the dosage right first time

Because mental health is so complicated, and children’s brains are still developing, finding the right level of the right kind of anti-depressant for a child can take time.

Nora is taking an SSRI (selective serotonin reuptake inhibitor) anti-depressant called Fluoxetine (commonly known as Prozac). We had to try the drug at three different levels before we saw any effects. Because the side effects are so horrible in kids, increasing the level of medication has to be done gradually.

Again, all of this takes time. Again, it’s worth hanging in if you can.

The side effects are horrible, but they pass quickly

One of the (very valid) reasons parents are reluctant to give anti-depressants to their children is because of the side effects. They are horrific.

Nora’s depression meant she was extremely suicidal and unable to eat. She tried to kill herself several times. She was self-harming. She lost so much weight we thought she might have be fed through a tube.

Two of the most common side effects of Fluoxetine in children are increased suicidal thoughts and nausea. If your child is already suicidal, and already struggling to eat enough food to survive, you really don’t want her taking something that’s going to make this worse.

Did we see any side effects? Yes. Nora threw up for several nights after she first started taking Fluoxetine. And she was extremely suicidal (although, if I’m honest, I couldn’t say whether this was because of the drugs or part of her general illness).

However, the side effects pass. In Nora’s case, they passed relatively quickly (I would say they had disappeared completely after three weeks).

They won’t ‘cure’ your child but they will help

I really wish I’d known this earlier. Somehow, I believed anti-depressants would miraculously ‘cure’ my daughter. I read other people’s experiences of taking anti-depressants. They spoke about waking one morning and feeling as if a cloud had lifted from them. I thought this was how it would be for Nora, but this wasn’t our experience.

Nora’s recovery was gradual. Day by day, we started to notice small improvements. Taken together, those improvements are dramatic. But they are still only part of her recovery.

The really key part from now on will be the work she does with her CAMHS counsellor, helping her to manage her feelings and build the resilience she needs to navigate her way through her teenage years.

When they start to work, it’s the best thing ever

This is why you have to hang in there when your child starts taking anti-depressants. For all the reasons listed above, it’s not easy. But it’s worth it.

My child was so very ill. She had stopped talking. She wanted to die. She had developed psycho-motor retardation, a condition that slows down your thought processes and body movements.

Today, she is engaged with the world again. She can fall asleep without needing me to be with her. She speaks and laughs and cracks jokes with her brother. She sees her friends. We go swimming in the sea. She is alive and embracing life.

All of this means more than anything. My girl is coming back to me.

We chose to give Nora anti-depressants, exactly as we would choose to give her life saving medication if she had cancer or any other illness. I am very glad we did.

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